Sunday, August 29, 2010

God Doesn't Make Mistakes - Down syndrome song CD

Here's one for my special PEEPS

All the parents who wear my shoes will totally laugh..........

I am at a parenting crossroad.. My boys love to play dress up and "house" although they are too old as society would understand them continuing to play dress up..
Jordan was the Mom, Steven the Dad... you know where I am going. Well Jordan ran to tell me Steve kissed him on the lips. Steven is saying Jordan is a girl (because they are playing that Jordan is a girl) Jordan is in deep training right now we do not kiss on the lips "friends" because he has kissed on the lips in school and gotten written up... So confused by if you can in play or possibly this the opportunity to "turn in Steven" one would only be able to guess... My position as to listening and guiding as the parent was about like the best comedy show I have ever been to. Steven defending his kiss was to "a girl" playing his "wife" or the Mother to his children... and Jordan wanting me to be sure I understand Steve kissed him on the lips not vice a versa but admitting they kissed..... LOL my trying to sort it all to be sure everyone understands we are not kissing in pretend play or in school or anywhere at this point the others in the home are cracking up which in turn gets me off track.............. HOW DO WE PARENT THIS..LOL without cracking up. During the whole who kissed and a boy is a boy is a boy not to mention your brother, Tressa is crawling to the open kitchen door which I am standing literally 2 feet from as if she is going to make it to the graham crackers on the counter Emma is snacking on while I make dinner..... and totally bummed when I ask her to stand up and go back to her card game. I just had to share.. such funny moments that may not seem funny at all to you but living it is hysterical some moments.

Tressa finishes the front of her tote




Kaitlyn with a fever works on her tote




OT exercising w/ Tressa conversation is so PWS driven

As I sit here listening to Tressa with our OT doing exercises they are moving into the bicycling. Ms Jan Say's OK Tressa where are we going?

We are going to pizza hut, McDonald's, Burger King, APplebee's, I HOP, Taco Bell, Perkin's, Little Cesar's, I Hop again and how about Outback steak house.... I think she road her mind up Del Prado stopping at every food joint.. LOL

Ms Jan is cutting in saying, how about the park, how about kayaking, how about to the beach... and Tressa is very clear if she is going to exercise and not be on METFORMIN it is going to be driven by food imagination....

I had to take Tressa off her Metformin for the weekend to see what is happening with her blood sugar levels and let me tell you the difference from being on medication to not being on medication is so obvious. I had forgotten how awful it was OCD food related because she has been on the medication for a couple years and it took the food drive down... how soon we forget how well we have it when we get even a small reprieve... I have been crying in my pillow countless times this weekend dealing with the food seeking, driven OCD about food and her aggression to push me over to try to get to a bag of rolls I pray we are able to get back on medication the beginning of this week.....

O.T. Shoe tying requires a good night sleep prior...



Friday, August 27, 2010

The first week of school year 2010-2011 is a near memory. All but Lucas had a flawless bus and busy back to school week. Keirsten seems a bit more organized although the social aspect seems to continue to be priority which is hindering her personal goals for the lifelong success of Keirsten... one day she will realize mom knew best although today she feels she could run the world.

Kaitlyn is so excited about the label of being an 8th EIGHTH GRADER as it has been planted into her head this is a great year and High School is next. She said all summer she just wants to go to High School so I am sure this was their motivator for her to make this a great year. Now for the funniest thing although men, this is total female...... yesterday she wore a new pair of shorts, they were TOO big and she didn't want to wear a belt as I instructed, she told me to never mind. I explained her pants would be falling down you must wear a belt. She wore it but took it off on the bus. LEFT IT ON THE BUS! Her shorts fell down nearly 1/2 her behind would show.... when she got home she did not have her belt and she told me what she had done.... well what I SAW was her hind end because she chose to put on her big sisters T back underpants!!! two bare skin round bunns hanging out for all to see...... LOL and then she says, Mom I started my period at school today... lovely!

Steven is doing the usual Steven avoiding doing work at school scribbling, today we GOT ORGANIZED! He has a 3 ring binder with each class and enough paper for a day or two, no markers, no color pencils and clear instruction he is going to work at school. We practiced which section was for which class and we labeled for him to understand... very sad he has been in school this long and is not reading "science" Makes me crazy!!! FLASH CARD PEOPLE FLASH CARDS!!!!!! He sure can read terminator, Ghost Busters, Monsters Inc, Dinosaur, etc...He could read science if he was flashed the word since 1st grade. I sure wish the general education department would read up on how to teach children with Down syndrome to read, it is research based. Also have how to teach Math to children with Down syndrome.

Jordan is not doing well staying awake in school, his meds were upped during the summer and side effects are tiredness, sleepiness, etc. He fell asleep standing up in front of the clinic worker. I stopped the meds after calling the doctor so we are going to see how it goes with no meds and if he needs something taker the lesser dose. Time will tell... him off meds would make me very happy.

Tressa is having swing sugar levels, 52 one day to 84 the next.... meds stopped on her as well until we see her Doctors,that is an overnight to Gainesville which takes planning... I am planning.

Lucas started today, I pray this is a great year for him.

Monday, August 23, 2010

I am thankful today because....

I have done laundry and no more laundry has piled up....
I have mopped the floor and no spills or messes need mopped up...
I have run the dishes and no more dishes have piled up...
I have ice frozen in the freezer
I have the temp set at 78 and it is 78 in here...YES!!!
I have cleaned a couple rooms deep clean and nothing has moved....
I have not argued with anyone since 8:54am
I have had no complaints about anything...
I have had no one ask for anything unreasonable.
I have not heard an argument...have not hear a cry, have not heard anything slam or crash, or a door open or close...

I have heard laughter, I have experienced little milestones reached.... and I will miss the chaos, tomorrow.

PLAY-POTTY-EAT-POTTY-NAP-POTTY...









Middle schoolers are ready...and their off!




Lucas' misses the first day do to bus issue....




As you can see he is completely torn up with saddnesss..... LOL He has the toys all to himself... FREEDOM RINGS FOR LUCAS!!!

The pictures tell the story...1st day of school








Sunday, August 22, 2010

Emma with her 2 little teeth ate off a spoon all day






Emma ate like a big girl all day!! no babyfood/blenber..... yippeee
She still only has those two tiny bottom teeth. LOL

Steven's bag is completed



Jordan's bag is completed



She is just so darn cute!






Sitting on the bed playing with her Fun 2 Learn LAPTOP. The lap top says "Excuse me, touch a letter" good manners....lol