Wednesday, December 22, 2010

Today we made house slippers


random December 2010 photos








facebook has many more photos

Since I have joined facebook and blogging it is easy for me to shoot a photo with my phone to show you projects the kids are doing verses on the camera and uploading a seperate time. If you join my facebook you will see the day to day activities easier in photos.

we made most of our gifts this year, lots of crafts










Tuesday, December 21, 2010

Now that I got that out of the way.................

Hi, Merry Christmas/Happy Birthday Baby Jesus.. Happy Holidays... I have many friends of varied beliefs so that is my politically correct Intro.

I must say that this is the first breath I have taken without lists around me, worry on my shoulders and stress surrounding me.

The holiday party was a success although many children were ill this year so the attendance was a bit low. We had extra food for sure. I was so busy I forgot to get baby Emma on Santa for a good shot to hang... I hope to get to the mall before he fly's off for the year. The kids enjoyed their time at the party. We are back to our holiday crafts. I am not feeling the feeling of holiday cheer, kinda floating from one issue to another inside my head, which is in a fog... Having an ear infection at fifty is annoying for sure. It doesn't hurt, just keeping me in a fog, like my head is in a fish bowl.

Keirsten informed me this week, we are not poor mom we are on a tight budget and you (me) screwed this month up pretty bad...LOL hate when the kids are right. She is 17 now and doing much better with a new meds mix.

Kaitlyn is 16 and was very cute at her annual physical when she was examined and did not feel her body should be invaded by her doctor. She actual fought his hands off her when he was trying to check her tummy .... then yep...a peek up top to be sure everything is growing correctly and she was upset her looked at "HE looked at my boobs mom".... LOL then came the conversation about her period and if she wanted to take the Depo shot to stop the bleeding.. yep yep yep stop my period until he said she would need to come every three months for a shot.. then it was No SHOTs No SHOTs... so we are holding off on that until next year.

Steven is Mohawk boy, he loves his hair cut in this style as it makes for conversation from many people out in the public. The attention is making Steven more confident. He is growing up fast, has his moments, although over all he is growing up to a nice young man.

Jordan is Jordan and very much mommas boy still. Some days it feels warm and fuzzy and other annoying and stressful. He is doing very well at school which is wonderful. He is picking up more and more as he calms in that setting. His wish for Christmas is the Lego's pirate ship and his dream to get on the Disney ship for a cruise to be with Capt Hook and Peter Pan.

Tressa rides on Jordan's dream telling everyone she wants to spend the day with Windy little John and I think the other little brother is Mathew maybe??? She knows..... well then she says Peter pan and Tinker Bell. She is struggling with her PWS fight OCD and most of the time is in control. The off moments well it is what it is.

Lucas is getting more Mobile, acting like a typical toddler, exploring his environment and testing everyone to be on their toes. He got away the other day while our home had two extra families staying and a one time incident where one families truck needed power boosted with a drop cord,,, front door propped open and whala.... Lucas was all over that opportunity. He is home safe and sound actually before the police got to the neighborhood he was already home, showered and eating. He is oblivious to the dangers in the neighborhood..... we live near many canals, lots and lots of water.

Emma is the cutiest little red head alive. She is a mommas girl although very happy to snuggle with several others as well but now with mommy the giggles melt my heart.
My problem with blogging is that I was raised if you do not have anything nice to say, say nothing at all.... I am sure I have lots to say nice but lately when something starts out nice it tends to turn not so nice and I for whatever reason am struggling with the whole life just isn't fair..... and I know as a mom I should be able to swallow it to understand everything in life isn't fair although as an adult I want to be a part of making it fair although changing life's history seems a tad bit out of my league of advocacy. Although knowing me I am going to take the hard road and try... where is my head...it is out there...

#1 I have had an ear infection double and feeling miserable although without health insurance I will hold out to every home remedy and many times send myself deeper in pain, who knows what medically I risk but without health insurance it is what it is... some say go to ER for everything, my credit report says that is not a good plan, My brain goes to why does my ex have quality health care paid by tax payers while residing in prison for committing a crime unspeakable..... yet I adopt 9 children all having special needs give up my career, devote my life to the welfare of children and I can not get antibiotics... well I can but I do not QUALIFY for any help so I would have to fit it into the budget...

Then we QUALIFY for nothing, really nothing.... absolutely nothing.... I hear our country did a energy program and to QUALIFY for the perk you have to be elderly, disabled or have a child under the age of 5 years old...I am a shoe in 7 children disabled, one under 1 to boot..... shoe in...NOPE we do not QUALIFY. I know I should be thrilled that our income doesn't QUALIFY us but when you sit in a lobby where every woman has her nails done, hair tied twisted, highlighted fresh cuts and fashion clothes with crystal clean new shoes... with some average cars I wonder..... when they figure the income to QUALIFY do they understand that with 7 children who are disabled I replace the average toilet way more often than the average household, I drive a van that takes 10X more to run, more windows are broken from fly away baseballs, holes repaired..oh refrigerators wear out or stoves get broken more often than the average household.... how about all the doctors appointments hotels for out of town medical needs, hey the fact it is two hotel rooms not one.... but where does that play into the equation.... because we just do not QUALIFY... ''Here is my grip...

A person on SSI receiving 674.00 a month gets additional $180.00 for food... for one person. but because I have more than one... they get nothing because they do not QUALIFY... not that I want food stamps but please if there is some energy credit...for a person with disabilities...toss the perk out where it makes sense... no I do not lie, I will not babysit and not report it, I do not sell any drugs or work under the table and if I earned any income I would report it and do.... so I do not get my nails done any longer, I am in need of a hair cut, I am without medical care and we do save every bit we can by cutting each and every corner possible... who gets a new refrigerator delivered in hours for $20.00 a person who works her budget to the penny..... My house is busting at the seams with kids toys, therapy equipment and kids clothes.... My life is providing for their needs... we are not NEEDING for anything but ghee it would have been nice to have that little extra because we QUALIFIED for a little perk.....

Saturday, December 11, 2010

I have no clue how you moms of two year olds blog, I have NO TIME..... She is into everything if I am not one on one doing things with her and then she takes a nap, I do the household items I use to do when she sat and played solo. NOW, I barely get a handle on those items and she is up from her nap.... I then use to get to have my personal time at 8 pm.... until 11ish. Well since she rested for two hours she feels she is entitled to her time after 8pm.... So here I am with this bright eyes little fire cracker ready for mom and her time and she would very much like to take over this lap top for her time with Sarah Grace...... Ok, I need to get off before she rips my arm off so if I get her off to sleep and have time outside my me time, I will be back on....... HOW DO YOU MOMS DO THIS?????????????????????

Sunday, December 5, 2010

Happy Holidays to all.

Bless me followers for I have not posted, it has been 2 months since my last post.

I have not been too busy nor lacking blog comic material. i have been living with out a lap top or computer in the house. I have had my Palm Pre which if you have one know that the max is getting things uploaded on facebook. Spelling is not corrected, many times words I thought I printed came through totally different.

So today as I am in a slump am here to catch you all up.... since October 5th 2010.... Lucas is now 7 WOW is right, Tressa turned 9, Mandie turned 32 and is not in her last month of pregnancy, Thanksgiving came and went with us boycotting in a sense because we were all going to be together today (Mandie's baby shower..). I tend to take the hard road in learning life lessons...never boycott Thanksgiving. CHECK.... ingrained into my memory forever.

I am in last of the planning for the annual Holiday party, following an awareness walk which was in line with the economy... not enough funding to throw a Holiday party.. $725.00 hall, $300.00 food, $230.00 table dressings, $150.00 centerpieces, $75.00 printing, and all the little things that make it magical... not including the $20.00 per child gift and $5.00 per family package..... $1,500.00 seems like min. to raise to make a stress free party which s so magical I am addicted to throwing it each year.. BUT as I mentioned the economy has take a dive to the point we are getting little funds... The Hall is paid, a family is donating food.... we are trying to be super creative, BUT it is what it is.. I look at the 200 people coming who will have a magical stress free night bonding with families just like theirs, making family to family support connections that will last long after the close of this event... No one can help a mom who is having struggles than a mom who is also raising a child with disabilities. We are a special breed. Our children have shown us a love others can not see or understand... our sense of humor is most often of a different level than the norm... we are just enough different to understand each other..

Let me catch up the families I serve....

Keirsten is turning 17 in a few days.... SCARY as her mom to know she can and most likely will walk out my front door to be "on her own" before long. I completely see she is not at all prepared for this move. She on the other hand has planned to save $200.00 to get her own apartment, not to mention the electric, cable, cell phone...hoping that water is included. Yes that was not a typo...she is planning all of this with $200.00 she hopes to save in the year. I on the other hand have her pre-registered to start at High Tech North which she will dual enroll into starting January in their cosmetology classes and continue in High School. In one year she will have a certificate to cut hair and have her test to give her a High School equivalency which in her graduating year she will walk as a graduate... That is my plan, maybe just as stretched although I am praying I have the better plan and in some odd way it will all fall into place. If all falls apart, I am in need of medication for the first time in my life.

Kaitlyn is making great progress in reading. She is now at or above the 3.0 reading level and getting better. She loves to read, the world opens for those who love to read. The reason this is so important is that when you have a child reading at the 3.0 level heading into High School planning is critical. Is it still important to keep her in general education classes where reading will be laid on the back burner. Is reading so important that she misses out on the electives we all can remember, baking those cookies in home ec. Making the album cover in art class... Having those partners in group activities which built friendships and fond memories. I am going to see schools and classes to make my final decision. She is her sweet self with the spike of wanting to be my roommate and not daughter.... you know she is a teenager. "I am 16 years old MOM" is her favorite saying to me these days.

Steven is doing Ok in his educational setting although A+ in social growth. He can move those finger skate boards like non other. He can maneuver campus like it is his back yard. He is speaking before being spoken to or ordered to speak... He is actually being groomed to be the first in his district to be a student led IEP... I am excited for spring when this will occur. Steven is having a terrible time with a rash that has been called ring worm but I am not convinced... it is "odd" so I am sure we are heading to a specialist..

Jordan...well it was a rough day so lets pass over that bundle of energy so I do not say anything I may regret...LOL

Tressa spent time with her previous speech teacher today at Mandie's shower and she was lovin the time. Tressa loves girl time, social time, time to have attention with adults. she is a hugger, a loving little girl. She is not the physical go getter so she requires a push every now and again.

Lucas ................. I will complete later.