I will give a little run down. Erin and Lara are staying with us right now. They have settled into the teens room with Keirsten which has built a nice bond between Keirsten and Lara. We went to see a couple of my favorite Docs in town who gave nice direction for Lara's foot for the next five days. One gave us his info in case over the weekend anything went array we are to call him. They took a couple stitches out allowing for any infection to escape the wound.
Josh is still here, staying at Michelle's looking for work. His plan is not to return to Indiana as he feels it is too far from family and he really misses Sunday family dinners... We are making the weekly family dinner priority for this year.
Kory is leaving Florida and going to Illinois to see if he can make a living and feel connected to the men in my life (brothers) for some positive guidance. He is excited about being in Illinois this summer especially as many fond memories are from the days in Henry.
Keirsten is on the phone or email.... She is typical 15 year old on spring break driving me nuts with her drama talk... This too shall pass. Keirsten has such a nurturing side which is seen with her times taking care of Emma. She does the middle of the night feeding to allow for me to have six straight hours of sleep.
Kaitlyn is growing up so fast. She is Mother Hen to Lucas.. Often is changing him, poor thing gets powder,lotion, oil and what ever else she can find... clean from head to toe and dressed a number of times a day.. Little Mama. He, I notice has learned to dodge her if he is not up for the attention. He has this run, he leans forward and goes as fast as his body will allow straight into me and grabs my legs.. He may not use words to communicate yet but I sure understand what he says. Kaitlyn has been doing a lot of reading and PlayStation games.
Steven is loving the break of no homework and lots of basketball. He is out dribbling first thing in the morning. Takes his ipod out to the swing and belts out some High School Musical Songs only a Mother could love.. The weather isn't really pool warm so he is busy doing other back yard activities. He is an outdoors boy!
Jordan is into the sand box this break. He collects action toys and piles them into a basket to take out side. Jordan has come to understand Emma is a real baby... he doesn't understand why she is limited on her ability to get up and play (walk, talk, sit) He is talking a lot, asking lots of questions. Lara and Jordan are together like siblings.. the two of them can play for hours then taddle taddle taddle...
Tressa is busy busy busy reading books, playing with her baby Lila and making sure each board game is played once a day... She is getting better about putting things away after she uses it so it is all worth the effort.
Lucas is up and around, the eye is better and he is as funny as can be. He is the one to make visitors laugh out loud. He will seek attention by doing something we have been waiting for him to initiate. Walks up to me and signs, he is thirsty. Goes to the Lego box and puts away all the Lego's but making sure everyone is aware he is doing it.. He is getting more endurance in feeding himself. Today I believe it is more about having the attention than his ability to continue to spoon an entire meal.. His play endurance holds out much longer with similar action.. He is a very smart boy with that crocked smile that assures me he is aware...
Emma is now 5 lbs 8 oz which is above the average in newborn weight gains. The Doc said at least a 1/2 oz a day and she is above that GO EMMA!
Me- well I am doing well, in any spare time I am helping a new baby find parents. A baby to be born in a month needs parents although this baby is likely a Trisomy 18 which will be a tough go at life. I believe I have located parents as well as two more baby's to be born possibly with Down syndrome. My attorney is excited to place baby's with special needs into families and not into the system. I am thrilled to help him make those connections.
Family Life with multiples living fulfilled lives in spite of being born with a disability.
Friday, April 10, 2009
Hello friends...We are all doing well. Chugging along any way moving forward so I consider that well.
We are hanging low because of the new baby and we have had some sick kids..Lucas has cleared his eye infection, thank goodness. He was ready for some fun this morning and Tressa is always up for board games.
I have Emma at the Doc this morning so have to cut this short. I got out to get to the store yesterday and realized WOW Easter is Sunday... Hair cuts, shopping and etc.. to have a house full and family pictures... Where is time going?
We missed some appointments which need rescheduled this coming week and Tressa is in St Pete for an overnight sleep study as well.. Lucas got his DAFO'S. Sure straightens him upright ...Love it!
Lara is having a tough time with her injury and we hope that the ped. Ortho Surgeons today can give some direction for treatment. I believe I posted. She caught her foot in the bike chain (with a chain guard on) and she was wearing crocs..so the shoe did not protect her at all. 20 stitches and a wicked infection set in. Poor little thing.
Everyone is hanging out, enjoying family time and the weather. I am getting one on one time with Emma although her breathing is becoming more and more a concern as it is more difficult to drink 2 oz without exhaustion setting in and laborered breathing starting just to get a little to eat... My heart hurts to see her struggle to breath.
We are hanging low because of the new baby and we have had some sick kids..Lucas has cleared his eye infection, thank goodness. He was ready for some fun this morning and Tressa is always up for board games.
I have Emma at the Doc this morning so have to cut this short. I got out to get to the store yesterday and realized WOW Easter is Sunday... Hair cuts, shopping and etc.. to have a house full and family pictures... Where is time going?
We missed some appointments which need rescheduled this coming week and Tressa is in St Pete for an overnight sleep study as well.. Lucas got his DAFO'S. Sure straightens him upright ...Love it!
Lara is having a tough time with her injury and we hope that the ped. Ortho Surgeons today can give some direction for treatment. I believe I posted. She caught her foot in the bike chain (with a chain guard on) and she was wearing crocs..so the shoe did not protect her at all. 20 stitches and a wicked infection set in. Poor little thing.
Everyone is hanging out, enjoying family time and the weather. I am getting one on one time with Emma although her breathing is becoming more and more a concern as it is more difficult to drink 2 oz without exhaustion setting in and laborered breathing starting just to get a little to eat... My heart hurts to see her struggle to breath.
Tuesday, April 7, 2009
Not sure what day it is...lol It is 3 hours since the last time I fed Emma, that is about how I am aware of time..day or night...who cares??? Three hours to the next feed. Jordan is coming around..he likes this new thing that wraps her fingers around his one finger during the night while I feed her...he believes it is how it is to be done... He will wake from a sound sleep and say "oh, baby eat" and positions his hand so his finger is out and hers wrapped around his..and she eats so much better as he sees it. Tressa is first in my room in the morning hours and she is usually amazed I am up. "whatcha doin mom, feeding Emma?" I guess that is the roll in which I am seen today. Later it was "has Emma pooped mom" the phone calls and question of the day...she went over 36 hours without a poop and this became national news for the Pringleclan..lol I must say when I walked into the room and smelled the aroma of fresh baby bowl movement I had an extra smile to picking her up... I had already called the Pediatrician and have an early morning appointment in case it was a blockage.. NOT!! yippee. It was a day focused on Emma and her breathing and tummy/bowels so not much more to report.. The kids are doing a lot of arts and crafts, made many coloring pages and these bird nests made of chocolate, egg noodles, jelly bean eggs and bird (peeps) which turned out very cute. Lots of outdoor play since the weather had a brisk breeze today..OK, brisk for South Florida kids. Yes, they had coats on 70* out. Tomorrow we have early morning Emma to Doctor then Lucas to Ortho to get his DAFO's...then to Christopher's Birthday party. Lots of photo opts tomorrow.
Monday, April 6, 2009
It's a manic Monday
I am adjusting as one would. Today started with an 8:15 ortho appointment to learn Jordan's elbow has healed in the form of a beak...like a birds beak...and the ???bone has healed ALTHOUGH in about two years if I see a distorted formation or distended elbow while he uses it I will need to revisit it but today we do not need surgery. Emma was with me and the Dr. was very kind to take the time to get to know her. This doctor is one of my favorite for bedside manners. He then informed me that having my family as his patients over the years has made him a better Doctor. He said that when he thinks his life is overwhelming, full to the rim he often remembers my journey in life and how much he thinks of my work with the kids...and his problems seem to fade away. He is a wonderful man.
9:15 the follow up from surgery for Steven's ears. He is released with a clean bill of health...he can fully swim and all activities back to normal...He sure made Steven's spring break a whole lot better. Emma again brought on conversations and one of the nurses is going to sign up...Yep! She is calling the social worker to get a home study so she can be in line for a baby girl with Down syndrome or other (not perfect newborn) I call it Designer Genes.
Off to the house, Mandie is regularly here at noon although she has taken on the flu...full fledged out on her sick bed. I am flying solo today.
Once home Erin and Lara are still home, Erin is looking for work on line and placing ads places to seek employment...the day was going forward to the noon hour when I gave Emma Rose a bottle and needed some sleep...about two and a half hours later I hear blood curdling screaming from Lara. I knew the scream was more than a spat with kids...I ran to the window to see Erin running back to the house with Lara in her arms and blood running from Lara's foot... Under cold water it is 100% ER bound. Erin is shacking. Lara had been riding the bile with croc's on and her foot went into the chain and ripped into the sprocket's and chain and a real mess.... 20 stitches and a traumatic trip to ER... Erin's first visit for trauma with Lara so she was shaken to the core... A stop for some ice cream at McDonald's was the end result and made things a little better.
At home while the ER had Lara at home the kids ran out to the bike. Jordan was with Lara at the time and was the one to run in and tell Erin of the problem. Steven took a towel, Kaitlyn grabbed the hose and Jordan brought in the bloody shoe Lara left behind. As I watch they carefully bring the bike back to the house, wash it off wrap the towel around the chain area and then wrap the hose around the towel. Just like we wrapped Lara's foot to transport her to the hospital.... then Kaitlyn says with a serious tone.."Mom, we need to get my bike to Wal Mart, it is bleeding".......LOL That is where her bike came from.
9:15 the follow up from surgery for Steven's ears. He is released with a clean bill of health...he can fully swim and all activities back to normal...He sure made Steven's spring break a whole lot better. Emma again brought on conversations and one of the nurses is going to sign up...Yep! She is calling the social worker to get a home study so she can be in line for a baby girl with Down syndrome or other (not perfect newborn) I call it Designer Genes.
Off to the house, Mandie is regularly here at noon although she has taken on the flu...full fledged out on her sick bed. I am flying solo today.
Once home Erin and Lara are still home, Erin is looking for work on line and placing ads places to seek employment...the day was going forward to the noon hour when I gave Emma Rose a bottle and needed some sleep...about two and a half hours later I hear blood curdling screaming from Lara. I knew the scream was more than a spat with kids...I ran to the window to see Erin running back to the house with Lara in her arms and blood running from Lara's foot... Under cold water it is 100% ER bound. Erin is shacking. Lara had been riding the bile with croc's on and her foot went into the chain and ripped into the sprocket's and chain and a real mess.... 20 stitches and a traumatic trip to ER... Erin's first visit for trauma with Lara so she was shaken to the core... A stop for some ice cream at McDonald's was the end result and made things a little better.
At home while the ER had Lara at home the kids ran out to the bike. Jordan was with Lara at the time and was the one to run in and tell Erin of the problem. Steven took a towel, Kaitlyn grabbed the hose and Jordan brought in the bloody shoe Lara left behind. As I watch they carefully bring the bike back to the house, wash it off wrap the towel around the chain area and then wrap the hose around the towel. Just like we wrapped Lara's foot to transport her to the hospital.... then Kaitlyn says with a serious tone.."Mom, we need to get my bike to Wal Mart, it is bleeding".......LOL That is where her bike came from.
Saturday, April 4, 2009
Tressa feeds Emma
ALL TWELVE HERE FOR EASTER!!!
Easter Bunny stops in to get the kids list....
Friday, April 3, 2009
Emma is home....The kids are on spring break
I only have a few moments, things are happening faster than any blogger could keep up...
Emma has two significant holes in her heart and needs total quiet to continue to make gains and prepare for heart surgery.. This is our focus for her. We have lots of volunteers to babysit her so we will be out doing our normal routines as a family.
When I pulled into the drive tonight, Jordan ran to the van to give me a hug and tell me he missed me. I went around to retrieve Emma and together we all walked into the house and into my room where Jordan simply asked " WHAT IS THAT?" He has the most confused look on his face and again said " MOM WHAT IS THAT?" I replied, this is Emma your baby sister. He said NO, Baby Emma is bigger and shows me his arms wide open. I explained no this is Emma..He backed off, seemed scared. Later as she was on the bed and he walked over he again said. Mom what is that....LOL I guess in time it will all make sense for him, today she seems to be an alien in our home he chooses to have nothing to do with...
Lots more cute statements...Tressa called my cell phone as we were driving home and asked me to put Emma on the phone...I said She can not talk but she couldn't seem to understand so she said she wanted to talk on the phone to Emma and I said OK, her is all she can say...it was silent. Tressa said, She doesn't want to talk to her big sister????? I think they all thought I was bringing home a toddler???
Tuesday, March 31, 2009
A super day
Jordan made 50 out of 50 points in his behavior. Tressa had a two sticker STAR day. Lucas came home with Glitter all over him from an awesome art day. Those three had school photos as class pictures (group) and tomorrow the Easter Bunny is meeting them for breakfast at school!!! Lots of activity keeping them busy.
Steven came in did his homework, played in the pool and stoked because he is spending the day tomorrow out on Sanibel Island with his class... Lucky Steven. I was to go on this trip to help but BUT BUT...Emma is doing so well..... fingers crossed she gets released tomorrow. I will drive over early to feed her as much as possible. I talked to them on the phone today and they all said she has an extra sparkle in her since I left her. She is sucking her formula and making gains very quickly...Amazing what humans do when loved and feel loved..
Kaitlyn is her happy self and Keirsten is her teen self..UGH teens...lol.. you know the teacher questioned where her project was and Keirsten said she aware of a project due...all the other students got the message...but she didn't say it
Steven came in did his homework, played in the pool and stoked because he is spending the day tomorrow out on Sanibel Island with his class... Lucky Steven. I was to go on this trip to help but BUT BUT...Emma is doing so well..... fingers crossed she gets released tomorrow. I will drive over early to feed her as much as possible. I talked to them on the phone today and they all said she has an extra sparkle in her since I left her. She is sucking her formula and making gains very quickly...Amazing what humans do when loved and feel loved..
Kaitlyn is her happy self and Keirsten is her teen self..UGH teens...lol.. you know the teacher questioned where her project was and Keirsten said she aware of a project due...all the other students got the message...but she didn't say it
Monday, March 30, 2009
Emma Rose Pringle DOB 3-24-09
Hello friends and Family,
Last week an angel was born into our world. Her journey thus far has been a series of losses… Born Tuesday; March 24th , 2009 she faced human contact with many obstacles preventing her from feeling human love as experienced by the majority. You see her Mother carrying her 32 weeks couldn’t kick a drug habit of cocaine which entered the body of her unborn child. Little did Mother know or understand her unborn baby has an extra chromosome developing throughout her body and the drugs were complicating things from developing naturally along with Trisomy 21. As her life plans began unfolding- the adopting parents; willing to take her from the arms of Mother, were thinking twice about the commitment due to the complications. The adoptive parents feel her needs are more than they are capable of dealing with. Lots of medical tests showing some serous medical issues are facing a baby with no family; Tuesday- Wed- Thurs… The Pringle’s were contacted on Thursday - Friday she was unconditionally loved as Emma Rose Pringle.
It is my pleasure to share with you my daughter…perfect in every way!
Emma Rose Pringle
Friday, March 27, 2009
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