Friday, May 15, 2009

This past week

A busy home is a happy one.

We are moving in fast forward these days. THe end of school brings IEP's for each of the kids and planning meeting choosing next years teachers for planning. All is time consuming but necessary for success.

Our home is busy with prep work for out of town company, sprucing up the flower beds, getting things in order. With the added responsibility in the home of a new born and with Erin and Lara here it tilts the routine a but in many positive ways although any routine tilted adds new challanges.

Keirsten graduates and heads to High Scool. It scares me some days because she still makes some really bad decisions in friendships and just self control so in a High School setting I feel she will be more an outcast and then what will happen as she tries way to hard to bring attention to herself,,,which all ends up negative.

Kaitlyn is ready for summer. She has not had her ipod for a few weeks because she can not control her LOUD singing while the headset is on which was too much for the bus driver to deal with so until Kailtyn can sing "quietly" she can not wear her ipod and she wants to sleep in.. Her morning personality is oh not so pleasent. She will stay at the same school in the same setting so her confidence will rise and she will be big sister on campus as Steven joins her in middle school. I see this a real positive addition to her educational setting.

Steven is leaving elementary school which will be a HUGE adjustment for him. He has had the same teacher for years, has been on the same campus and obviously knows where his school is in our community...ie he went there Saturday on his bike!!! So it will be interesting how he deals with middle school and more importantly bonding on the bus and campus with sister also there. Steven and Kaitlyn have never attended the same campus (that they can remember) It was tried during my divorce when my ability to advocate was exhausted and that put him into a seperate school and nothing ever got changed. His setting will be different in middle school he will be in a more accademiccally challanging setting as his beginning years he resisted any academics.

Jordan will stay at the same school going from 1st to 2nd grade in general education settings with behavioral supports. His behavioral support person is a K-1 although academically Jordan remains in pre K to K academics so this is no issue and she sure knows him well to help maintaine his success on campus with appropriate positive reinforcements so he doesn't resort to negative attention seeking behaviors.

Tressa...oh miss Tressa... I have not been able to successfully complete her IEP this year for a conclusive decision although it appears she is moving to 2nd grade with behavioral supports which in 2nd grade is a teacher I am unfamiliar with so this may be something new for me. Tressa needs--must have a firm hand as her personal para on campus. She is the most challanging of my children and runs ciurcles around many adults who just struggle with understanding the entire complex disability she has Prader-willi syndrome. THis needs to be in place as she manages to not be in class for academics because she makes up nonssensical reasons to go to the clinic, bathroom, call mom, etc.

Lucas is gathering such a cute little boy personality. He has this little smirk smile when he returns home from school you just know he has had a great day. He seeks attention now which is WONDERFUL. His role as Lucas has grown in the home as he is making his space instead of hiding away from the action he now engages in it for a time and then will sit back and watch but not hide in his room.

Emma. Well she is 24 hour care. She picks up every virus out there. Home only a couple days and she is conjested struggling to eat and again throwing up so not sure where this is heading. I go to Tampa Monday to see the heart surgeon and that will help me plan out local supports. I have OT held off until I know she will not suffer from strenious exercize to build tone. She is not able to hold a rattle and does not follow light up toys yet. She can lift her head although very weak. Medical is my priority today.