Wednesday, August 13, 2008

Blogging will get better

As you can see this is not my forte' although over the past few weeks the importance of people being able to see what our family is about, CAN DO, is so important with all the old school thoughts of people born with Down syndrome not capable of living fulfilled lives.

Our family has been busy this summer as we added a new member who needed our full attention to make necessary gains in his health and trust in people. Lucas is growing and blending into our family as an ole pro.

My grandson went out to CA for a nice visit with his Dads side of the family and loved all the adventures out there. During the time my daughter was missing Christopher a tragic event occurred They took some time to attend our local ball teams game "Miracles" and got great seats behind third base. The shots Mandie got of the players were sharp and clear... until a line drive went from the bat straight to Lauriano's face and sent them into the ER in ICU. This seemed like a dream, something we were all watching as if a television show and not our family. In the passing days it just made no sense. How unusual this whole event was. We scrambled to make arrangements for everyone to be there as needed.

Today the future is uncertain, Lauriano is home with strict instructions to stay on his back and no pressure to his face at all. They are seeking 2nd opinions and making decisions on what surgeries to do and what path should be a wait to see. Lauriano seems most shaken by the ball players lack of concern that none have checked on him. He felt they should have made some attempt to know what was happening. The fans sitting next to them all had to leave as theyy were covered in blood, shocked by the event. A sound Mandie said she will forever hear and the screams from all the people around them.

Here we have been keeping busy weeding the flower gardens, keeping in the pool for the very hot days and grilling for friends. Mosquitos have been worse than prior years and the economy has kept us a bit closer to home this summer.

Family time to remember each day should be spent the best you can be.

I will daily blog as school starts and it will get easier I HOPE.. I would love for anyone to ask questions to help pull out folks real feelings on life as a person with Down syndrome... because we are more than willing to share with the world all the joys we live each day of our lives and the lives we have touched.