Monday, April 27, 2009

So here is the run down

She gained!!!..now 6 and 1/2 lbs!! GO Emma. She isn't any taller, but head has grown. Temp perfect and exam shows no illnesses.

I need to check with Eye specialist to get in to see the Retina specialist and the Peds eye specialist to follow her because of the oxygen given after birth and the distress.

I am still working on the CMS intake.

Endocrinologist will follow her abnormal thyroid and we have labs to draw more today.

Neurologists will see her in the fall and follow her development

NICU follow Up is going to follow her and set her appointment at the adjusted age of two month being in July. Due to her born at 32 weeks, cocaine and Marijuana positive, Down syndrome ASD/VSD.

She has a herniated belly button we will wait and see until she turns two as to what that plan is.

She has a blocked tear duct also followed through the eye specialist.

Her heart specialist is in three days which will help ease my worries.

Early Steps has been out already... OT, PT and speech are to come.

A swallow review study is to be done.

We are adding cereal to the formula and after each feed holding her upright on my chest for an hour to evaluate her reflux or not.. if it doesn't improve she will see Gastric after next months appointment.

I am most likely missing some one but right now I need to feed and hold upright.... this is going to be a nice ADJUSTMENT to my schedule....LOL