Family Life with multiples living fulfilled lives in spite of being born with a disability.
Sunday, February 1, 2009
Our Tibi, known in the blog as Lucas
Lucas as you will see in the photos has made great strides in social skills. He has eye to eye contact with peers and adults, is making sounds and expressing through sign he wants and needs. He is holding his weight eating more and more table foods with less and less smashing, making into tiny pieces. His chewing is coming more in line with purpose rather than his chew start after the food was swallowed just because he knew he was suppose to do the chew, just not sure when or how it all came together. Lucas has so much more awareness of his surroundings and his place with in the home and community..well home. Much of the outside world experiences are still somewhat frightening to him. He cries when he is unsure of what is going on or about to happen. He cries at unfamiliar noises or sudden ones. Nothing I would not expect although we do not cave into his fears, he face them head on. We stay at the bowling alley as he cries pretty much the entire time, even rolling his ball. He cries and stops when I request him through sign to stop. It will start back up although if we go enough he will learn it is safe and fun. At the park which we go to much more often he cries only a very little. He seems to use it for things he wishes not to do. he would much rather be carried to the top of the slide than walk each step and he would rather sit at the top and watch everyone play and move about the fields than get down there and know he is going to have to walk about the grounds...sticks, grass, bumps and uneven ground make him"work" at balance, pace and all the textures continue to be a challenge for him. He is on no medications other than a multi vitamin daily. He sleeps through the night on his own bed. Takes bathes as his favorite activity playing in the water with tub toys. He will lay on all his musical toys with an ear on the noise output piece... although ENT says he is FINE. Heart perfectly working, Orthotic script in for a fitting to get "supermalleollar Dynamic Ankle Foot Orthoses" and with those new shoes as his feet have grown again!! We have his IEP coming to make decisions on next years education placement. My mind hasn't gotten past prep-K and hopefully they will allow him an additional year....He is still in need of social setting boundaries with peer role models modeling words, behaviors we want him to copy.